Glistening Particles… finding deep connection on the internet

A few days ago I was interviewed by Jane for her wonderful Glistening Particles Podcast series “Conversations with inspiring random acquaintances”. The podcast went live today and you can listen to it here. We talk about writing, spirituality, dog rescue, and a gazillion other things. Jane has a unique ability as a podcaster. We hadn’t talked or met until the moment of the interview – which occurred virtually, via Skype – but right from the start I felt I’d known her all my life and she created a very safe, wide open space to have the conversation. She asked challenging and inspiring questions, and I’m honoured to be amongst her ‘random acquaintances.’

Actually, it doesn’t feel random at all, her brother Mike suggested she talk to me, I met Mike when I was once part of an extraordinary social network called Zaadz (Dutch for “seed”). Zaadz was a not-for-profit, conscious online community created with a commitment to helping people create a better world. It was my first experience of social networking and online communities – I had avoided Facebook and MySpace, but this was different. And it *was* different. Ask anyone who was a part of it.

Zaadz was a place for authentic conversation, a place where I not only met like-minded people but those who were able to help me see my blind spots. We didn’t share pictures of food or family, we asked each other who we were, who we really were, and in the clear space that Zaadz created, it was possible to show up as our best selves and to ask each other, what can we do to nurture the world and all that is in it?

(Here is an interview from 2006 with Brian Johnson who was CEO of Zaadz: A Cyber Community Making a Difference.)

But in due course Zaadz was bought up and things changed. Some of the members attempted to re-invent the community elsewhere on the internet. I tried to re-create the writing group I’d led on Zaadz, but it just wasn’t the same. I moved into the noisy world of Facebook, scrolling pictures and updates and clicking ‘like’.

And then, out of the blue, many years later, I get an email from Jane inviting me to be part of her podcast. The dialogue we had this weekend felt like a re-connection with the days of Zaadz, and reminded me it is still possible to have these kinds of meaningful conversations and connections on the internet, with people I have never met before; that it is possible to have deep listening, deep sharing, here and now.

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Tea or coffee or crack-cocaine? 

I love to read about the lives of authors. I’m not talking biography – I’m talking about articles which mention how, in fact, they manage, day to day, as a writer. What they actually do to get words down on a page. Perhaps it’s because I’ve yet to hit the big time, and I’m looking for pointers and rituals to ensure that I do. Actually I think it’s because of the solitary nature of writing, and reading how another writer’s day unfolds gives me a sense of camaraderie. I also like to find out how, in particular, they engage in hammering fingers at the keyboard (I tend to hammer forehead on desk). At author readings questions from the audience sometimes include a few along the lines of: Do you use a pen or a computer? How many words do you write before clocking off? Again, as if there is a special, secret code that will unlock the route to a best-seller or even a poor-seller. Morning writer?  Tea or coffee or crack-cocaine? Dog or cat? Anything at all, just tell me how you do it so I can do it too.

Even though I have been ‘doing it’ for some years now, every time I sit down to the computer, it feels like I’m starting all over again. Actually, it seems to get harder, not easier. So I avoid writing and instead pore over The Guardian’s ‘My Writing Day‘ articles, looking for sustenance, tips, anything at all to keep me going. Actually this series is wonderful, and I read it as much to laugh as to feel not quite so alone.

For what it’s worth, I can’t read my handwriting so I don’t use a pen. I can barely hold one, it’s been so long. I’ve been editing my novel for years and a first-draft daily word-count doesn’t really factor into my day. When it does, one single spaced page would be the minimum I’d hope for – around 500 words. On Freefall retreats I’d generally write up to 3000 in a (long) morning. Tea, usually, green or black, but coffee on those retreats (hence the 3000). But Ronan clearly prefers crack-cocaine as you can see from the photograph. When I’m not on retreat, fuelled with caffeine and forced into a sheer terror of morning activity by a mid-day deadline, I write when I’ve put off writing for many hours I know I’ll kill myself if I don’t get something down, by which time it’s usually late afternoon. Very late. Far too late. Time to make supper, in fact, and promise to do better tomorrow. Cat, of course. A dog would be too easy to distract myself with.

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Hobart Publication: The Bird


Delighted to announce that HOBART has published as a web feature my flash piece “The Bird”.

(image: Bryan Bowie)

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Things We Don’t Want To Talk About

Things We Don't Want To Talk About - Menopause

I’m sure there are many things we don’t want to talk about. But the ‘thing’ I’m referring to is menopause. It’s not exactly a sexy subject. More often than not, it’s referred to as a kind of joke (Google ‘Menopause jokes’), oh the horror of a menopausal woman. And those of us who are going through it often try to pretend it’s not really happening, an embarrassed flap of hands when a hot flash occurs, Let’s move on. I don’t want to be a bother, I don’t want to be considered ‘past it’. Old. Et cetera.

Essentially there is a culture of silence regarding menopause: a report by the British Menopause Society found that half the women going through menopause haven’t visited a doctor, as many are ‘too embarrassed’. And yet the symptoms can, literally be catastrophic. I know, because they were for me. I’m writing this blog in the hopes it’s a small step to help break this silence.

I actually started menopause about 6 years ago. I experienced mild hot flashes (or ‘flushes’) – quite pleasant for someone who is usually cold, and I put on weight, which was a blessing as I’m underweight. The most debilitating symptom was breast pain, so extreme I had difficulty sleeping. I tried bio-identical progesterone bought from the USA, but it didn’t make any difference, and then symptoms slowly improved and I’d only have the occasional, mild hot flash.

About a year and a half ago, the hot flashes began to increase in number and intensity. At the time I was working with a herbalist to treat my 22 year-long chronic immune system dysfunction (possibly as a result of contracting South African Tick Bite fever). We were not sure in fact if the hot flashes were viral in nature or hormonal, as they were not responding to herbs that commonly help. I was also working with my GP and he was taking a slew of tests. I saw an infectious diseases specialist, an ENT specialist. No tests showed anything wrong. I asked about hormones, and he told me blood tests would just show I am post-menopausal.

By March of 2016, my symptoms had rendered me almost completely housebound. I’d have 8 – 14 hot flashes a day, a few at night. They did not last more than a few minutes, but for those minutes I was incapable of doing anything at all. Generally I’d have to lie down. Hot flashes were not just ‘sweats’, they were like having sudden onset jet lag, being dunked in far too hot bath and having a panic attack (racing heart rate, dizzy, pressure in my abdomen) — all at once. Sometimes I couldn’t even talk, or open my eyes. In between hot flashes I was OK. I’d begin to do a little work on my computer, and then, wham, another one would hit and I’d have to lie down on my office floor. Or I’d think , it would be nice to go out for a walk, and ten minutes into the walk, I’d have to hunker down on the sidewalk until the flash was over. I felt ambushed by my body, unable to function for any length of time.

I stopped going out. I stopped exercising. I got very depressed. I didn’t know what was going on. I tried other herbs. I tried cold packs. I tried to ‘think’ myself cool. I did deep breathing exercises. The hot flashes were worse after eating and so I thought perhaps I had histamine intolerance, and I radically changed my diet. I did experience an initial improvement, I think simply because I was eating better. And then the flashes just got worse, and worse.

I thought about trying bio-identical hormones again. I found a private doctor who would prescribe these. I mentioned it to my GP and he agreed it might be worth a shot. Neither of us mentioned “HRT”. I didn’t know much about this other than the muffled but clanging alarm bells. Didn’t it increase the risk of cancer? Although I had not researched the facts, it seemed clear HRT was NOT something to even consider. And clearly my GP thought the same thing.

So, in February this year, I booked an (expensive) appointment with the private doctor. Blood tests showed I had rock bottom levels of oestrogen, progesterone, testosterone and DHEA. I had expected the doctor to prescribe perhaps one or two transdermal creams, instead I she sent me away with 2 transdermal gels (testosterone and oestrogen), a vaginal suppository of estradiol and a micronized progesterone pill to take at night. I felt a little overwhelmed.

I felt even more overwhelmed when, after doing the research I should have done before making the appointment, I discovered bio-identical (or ‘body-identical’’ hormone therapy (BHRT) is actually not that different to taking HRT. There are still risks associated. I worried: was I doing a terrible thing to myself? I worried even more when after two weeks things just seemed to be getting worse. And then at the three-week mark, there was a sudden change. Instead of 14 hot flashes, I had 3 or 4. At the four-week mark, I had none.

Was I celebrating? Yes I was. And, what if I’d received treatment last March?

In the process of getting my blood tests I discovered there was a nurse at my GP practice who specialised in menopausal issues. The female NHS doctor who ordered the blood tests the private doctor needed – my regular GP was not available – who told me this, also told me in the past HRT was overprescribed, but now, due to the cancer scares, it’s under-prescribed. She told me there are now different kinds of HRT available on the NHS, better tolerated kinds. She told me that in fact in addition to alleviating symptoms, there are health benefits to HRT: it can increase bone density and some say it can protect one from  Alzheimer’s.

I had already booked – and paid for – my appointment with the private doctor so I didn’t pursue getting treated at my GP practice.

Actually, once my catastrophic symptoms stopped, the first thing I felt was rage. Rage that I had not been given adequate information or care by my GP. I changed practices, and now have a female GP on the NHS who is prescribing BHRT (all available on the NHS…) and who is monitoring my progress and symptoms, so I don’t need to fork out buckets of money to a private doctor. I have also learned that starting BHRT or HRT earlier rather than later is safer, and increases the benefits to bone-density. It might have been better if I had started a year ago. Or even 6 years ago.

Perhaps if I had been more vocal about what was going on (I thought I had been), perhaps if I didn’t ‘present’ with a complex case, perhaps then my now ex-GP would have said, Have you thought of HRT? and talked me through the options. I don’t know. What I do know is that what I went through was entirely preventable, and that after a year of near total inactivity, I’m still very debilitated.

If you are a woman ‘of a certain age’ please don’t suffer in silence. If you are a man (or woman) who loves a woman ‘of a certain age’, help her find support. This is an excellent online forum on menopause and all things HRT / BHRT: Menopause Matters.

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We All Need Good News…

It’s been a challenging time for me recently, so it was lovely to receive two bits of good news this week. I was awarded a travel grant to help towards some of the costs of travelling to Crete for research on a new work this year, and I heard that a story of mine will be published in Hobart, a literary journal in the US (http://www.hobartpulp.com/).

(The image is a photograph of a photograph – of Chania port when I lived there in 1969.)

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Fish Listing

Screen Shot 2016-04-11 at 22.55.40
It’s a long short list, but nice to know my piece ‘The Bird’ was on it: Fish Flash Fiction Prize 2016, judged by Nuala O’Connor. And, another piece was on the long list for the Fish Short Memoir prize 2016, judged by Carlo Gebler.

Thank you Fish!

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Losing My Mother

Berrell Jensen as a young woman, South Africa

Berrell Jensen as a young woman, South Africa

My mother, Berrell Jensen, died on the 25th of July at Mercy University Hospital, Cork, Ireland. Nine weeks ago, today. She was 83. Losing her has been profoundly devastating for me, perhaps all the more because we had a complicated, often estranged relationship.

In the last years of my mother’s life I would sometimes wonder how I would feel when she had gone. I imagined relief, mostly. She was physically suffering and lived reclusively. I felt, for the most part, burdened by these facts. Although I admired and appreciated the extraordinary things she’d done in her life, I could not locate feelings of love for her.

Perhaps I ‘lost’ her when I closed my heart to her, aged 13. Perhaps it began earlier. At critical times in my life I felt my mother failed, betrayed or abandoned me. Although being a rebel and a feminist, and a role model for many people, she did not prepare me for the challenges of becoming a woman. When my first period came, I thought I was dying. I waited for her to come and ‘make it all better’ but she did not and I washed my sheets in secret, and from this moment viscerally felt myself shut her out. But the seeds of this process started earlier, when she unwittingly – or uncarefully – exposed me to her sexual life and to her brief but violent second marriage. The list goes on. Her inability to help me through depression and bulimia, although in her work as a community centre director, she was instrumental in assisting others who had mental illness; her subtle chauvinism in her behaviour towards me; her endless and lengthy advice on what I should be doing with my life, without asking me what I thought; her rage when I wrote to her about a deeply transformative experience I had which concerned my father’s death in a family car accident.

Berrell Jensen Netherlands Bank commission, Johannesburg 1962

Myself and my mother, as she worked on one of her copper ‘wallpaper’ commissions for the Netherlands Bank, Johannesburg 1962

The truth is my mother felt guilty for all these things. She felt she’d neglected me when she had had to work. She believed my father’s death was her fault: she should have driven, he had drunk too much. She blamed herself for my bulimia, and even, I suspect, for my decades long chronic illness. However she lacked the skills to talk to me – to anyone perhaps – about her feelings. In my 20s, during the worst stages of my bulimia, she wrote to me and said I needed to pull my socks up and get on with things, that I could not blame her or my father’s death for what was happening to me. Words that can only have been written because of her feelings of helplessness and remorse. I know this now, I have known it for some time. I went on to work on my issues with therapists and healers and spiritual teachers, and I learned so much: how to truly feel what was going on for me rather than rationalise it, how to talk honestly and directly with others. I learned how to take responsibility for my life.

But at no point did I choose to use what I learned when I was with my mother. I remained resolute in my early decision to exclude her from anything that was tender or vulnerable. Even in the few years I lived in the same country as her, I only made sparing visits, focussing on accomplishing any ‘jobs’ needed around the house. I gave her advice on nutrition, and made her monthly orders for supplements. I helped her out with her computer.

I would cry when I left her, acutely feeling her loneliness. Nevertheless, I did not choose to spend Christmas with her, which she spent alone for decades. She said she hated Christmas, and preferred not to do anything, and I pretended I believed her. I did not choose to visit her on her birthday, not even her 80th. Her birthdays were also generally spent alone.

I would cry when I left her, acutely feeling her loneliness… Now that she is gone, I understand this: we were close. So very close. I felt everything that was going on for her, and she me. Perhaps in this one way it is understandable that I found it so hard to spend time with her. It was too painful. She did tell me once, that she woke up in the night weeping.

Berrell Jensen, publicity shot, Santam Bank, Johannesburg, 1966

Berrell Jensen, publicity shot, Santam Bank, Johannesburg, 1966

My mother had much to weep about. She might have been one of South Africa’s most famous artists in the 50s, 60s and early 70s; she might have marched with women in the Black Sash against apartheid, she might have changed people’s lives with her social work in Belfast and London, but she was also a child of an alcoholic mother and she experienced her father as emotionally distant, a man who thought women should be wives and mothers, perhaps secretaries, but not activists or artists (she paid her own way through university in South Africa by driving a taxi). As a young child she was confined to her bed for a year due to meningitis. Also as a child, she was raped by a member of her family (now deceased), and fought off another rape as an adult. She dropped her aspirations to study for her Masters degree in order to support her family. She inadvertently witnessed one episode of her husband’s several affairs – this one with her best friend. She survived a horrific car accident that killed him, an accident that occurred the night of her son’s 11th birthday. She single-handedly raised her two children and supported her mother-in-law, often taking on work that was gruelling and very poorly paid. She lived frugally all her life and, in her last ten years, in difficult circumstances in a damp and isolated house.

She died in hospital, from kidney failure, lung congestion and heart-related complications. I was with her for most of the last two and a half days of her life, two and half days that changed everything I’d ever felt about her.

I arrived on a Wednesday evening, a late flight. The moment she saw me she tore off her oxygen mask and a monitoring device stuck to her forehead, and she opened her arms and said, “I just wanted to see you.”

The moment I saw her, my heart opened. The heart that had been shut for forty years.

Table glass covered, in copper, brass, enamel, created by Berrell Jensen

Table glass covered, in copper, brass, enamel, created by Berrell Jensen

During those short last days, we frequently gazed long into each other’s eyes. We talked little. Her mind had been failing and I don’t know what she was conscious of, but it seemed to me that she was in a state of grace, that the language spoken between us was deep and profound, there were no words needed. (She did once say loudly, “I love you my darling” – silencing a discussion of bodily ailments between two other patients in the emergency ward.)

She would smile if I smiled, but otherwise there was no need. We both felt our love for each other, of this I am certain. And I told her I loved her, often. Words I had never said before. She would nod, and smile, and I knew she was telling me the same thing.

On Saturday afternoon she started to fail rapidly, and the nurses and doctors made me leave the room while they ministered to her. I had only one wish at this point, which was that I would be with her when she died. I was not.

And so began the grief. I felt as if someone had taken a hacksaw to my chest. The pain was unbearable. Is still, when it visits. When a dear friend told me, It is unbearable, I knew she understood.

Pain made greater by remorse, by regret.

Totem, in bronze, Berrell Jensen

Totem, in bronze, Berrell Jensen

I regret not listening to the voice inside me that said, I should be there now, I should be there now, for the five days prior to my actual arrival before she died. I regret not listening to the intuition that told me, also five days prior, she would die on Saturday and so stopping the doctors from putting the feeding tube down her nose on Friday. I regret not removing a suction tube on Saturday morning from her other nostril, a tube that caused her so much discomfort. I regret the hours I did not spend at her bedside in the hospital. I regret the many things I did not tell her during the hours I did.

But these are small compared to my remorse for not overcoming my decades-long resistance to being with her, talking openly with her; my remorse for not spending time with her in her last years when she suffered so much and was so lonely; my regret for not doing the many things I could have done to make her life a little easier, a little less lonely. I needn’t have done anything drastic, but on my infrequent visits I could have sat quietly with her, asked her gentle questions. I could have given her the space to share with me, if she so chose. Or we could have just sat, and gazed out the window at the birds she loved.

Perhaps those two and a half days of precious connection have put into sharp focus what I have lost, what could have been, had I managed to set aside my list of accusations.

Commission for public building in Capetown, aluminium, by Berrell Jensen

Commission for public building in Capetown, aluminium, by Berrell Jensen

Many have said my mother was always a difficult woman, independent and stubborn, and so I should not blame myself for her situation. I have been told that had I taken more time to truly be with her, it probably would not have made a difference. Perhaps so. But knowing these things does not change how I am feeling.

I have been told I shouldn’t be feeling regret and remorse. For me I sense these feelings as a kind of teaching, a way to deeply remind me again and again to be truly present to what is, to live my life in such a way that I never again cut off emotionally as I did with my mother; to remind me to keep my heart open. I thought I was protecting myself from pain. I know the pain I feel now is all the greater because I closed myself to her.

There is more to write. The grief that we die at all. The incomprehensibility of this fact, still tearing me to pieces.

Berrell Jensen, late 60s or early 70s

Berrell Jensen, late 60s or early 70s

More mundanely, the utter catastrophe of what is expected of next-of-kin when someone dies. The amount of work involved is so contrary to what is really needed at such a time, work which brought me to my knees. The first thing one nurse said to me after my mother died, was: “You have to contact a funeral director.” I could barely breathe, let alone begin to know the steps involved in just this one thing, let alone navigate what was required for probate (the meaning of which I only learned after my mother died).

I am sharing my experiences and process (if you are still with me!) to encourage others not to make the mistakes I made, to be prepared, if just a little, for the death of someone close. To prepare for your own death.

I ask you now: think of those you love, are close to – in spite of difficult or complicated or estranged relationships. Is there anything you would regret not doing, not saying, should they die? Do it now. Do not wait. Do it now. It might feel too uncomfortable, it might feel it would cost you too much – financially and emotionally, it might feel as if it would take too much time, but please, do it now.

And, if you have not yet had to handle the post-death affairs of someone, find a friend who has and ask them if they might be on stand-by should and when the time arises for you to do it.

"Biosphere" Approximately 1 1/2 feet in diameter, Berrell Jensen

“Biosphere” Approximately 1 1/2 feet in diameter, Berrell Jensen

Write a will. Make sure it’s legal and valid. Put it in a safe place, known to your nearest and dearest or lodged with your lawyer, along with a list of all your accounts and financial institutions and all important documents – passports, birth certificates and so on. There are a number of websites which outline what you should do to prepare for your death, things that will make it a great deal easier for whoever has to handle your affairs, for example: One Day, You’re Going to Die. Here’s How to Prepare for It

Last but not least, what do you do when a friend of yours is grieving? The thing most people seem to be concerned about is intruding. I am sure everyone is different, but for me, all expressions of concern or love were and are much appreciated. It means a lot to me, the hundreds of little notes, the ‘Likes’, I receive on my Facebook posts, the emails sent. I may not be able to reply, but believe me, I see and have read every one and have been comforted.

Other things to do if a friend is grieving: if you can, cook a meal and drop it by. Offer to clean the house, go shopping. Even just getting basic groceries seemed an impossible task sometimes. If you can, do these things without asking. Send cards, little silly gifts.

And ask questions about the person who died. Perhaps I am unusual in this, but I so desperately needed, still need, to talk about my mother. About everything – the horrors that happened at the hospital. Her last moments. My remorse for the things I didn’t do in her life.

I need to share these things over and over again, not to wallow, but to help the emotions flow through and out. To keep my heart open. I need to talk, to honour my mother’s memory, to tell the world how much I truly loved her, even though I only discovered this love in the two and a half days before she died.

Berrell Jensen

Note: I have been honouring my mother every Saturday on Facebook with posts about her artwork and her life. If you would like to see more please visit me there.

The Guardian Obituary: Berrell Jensen
Architectural Association Obituary is on this page, scroll a bit:
Architectural Association Obituary
Or as a PDF on the ART ARCHIVES – SOUTH AFRICA website which also has a listing of my mother’s exhibitions and other references: Berrell Jensen

 

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