My Late-Stage Lyme Treatment


Dear lovely people…

This is an update to my fundraising for treatment. It has been delayed due to a number of things, getting COVID for one—the sickest I think I’ve ever been, Ronan getting extremely ill after eating some leek in my soup….and my not being able to see my own GP until last week, to find out if she can prescribe the sixteen weeks of three antibiotics for my late-stage Lyme diagnosis from Dr. Sinclair. I wrote about this diagnosis on my blog here in early November, detailing the diagnosis and also that I realise there are potential issues with the treatment. However, if it can help just one of my many symptoms it would be miraculous. I’ve decided to start, if I can, in January, so I can get through the Christmas period without side effects…. (I haven’t even mentioned that I have a potential basal cell carcinoma on my forehead, weirdly it seems the least of my problems, but it’s being seen to urgently.)

Unfortunately, my GP can only prescribe one of the antibiotics, Azithromycin. She has, however, booked me in for the two basic blood tests and ECGs asked for by Dr. Sinclair, and will also see me every month. And, I want to thank a very very dear friend for so generously funding the extensive supplement protocol that Dr. Sinclair suggested, to support my immune system and my body in general during this process. 

I will still need two consultations with Dr. Sinclair, and, towards the end of the protocol, one more of the extensive blood tests from a German lab that were the deciding factor in the diagnosis (see my blog).

Once again I’m asking for your help. The good news is that the two remaining antibiotics, instead of costing over £800 as originally quoted, are MUCH less, due to the fact I’m ordering in bulk!

The full update and financial details are on my fundraiser. Even just a pound will help, and even just reading all this helps. Chronic illness is such a lonely journey.

Thanks as always for your support, for reading this far if you’ve managed to read this far!

Previous blogs of mine on my physical situation:
My Late-Stage Lyme Diagnosis
The Art of Illness: Part Two
The Art of Illness
Finding Home
Doctor, Doctor
44 Weeks
Still Suffering
ROCKS AND FLOWERS
Feeling Normal
The Real Story
The Unendurable, Part Two
The Unendurable
IT’S NOT COVID
More Things I Don’t Want To Talk About
On Being Invisible

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